Join the Neurofibromatosis Network for the 3rd Annual #NFStrong 5K Walk for Neurofibromatosis. They’ll be food, carnival games & prizes, Zumba, DJ & music, face painting, and a raffle. Our 3rd annual #Nfstrong walk will be Saturday, May 19th at 9:00 a.m. at Saylor Park/Coplay Pavilion 245 N. 2nd Street Coplay, PA 18037. https://www.facebook.com/events/146116139437671/
Neurofibromatosis (NF) is a genetic disorder that involves the uncontrolled growth of tumors along the nervous system, which can result in terrible disfigurement, deformity, deafness, blindness, brain tumors, cancer and death. NF is the most common neurological disorder caused by a single gene and is more common than Cystic Fibrosis, hereditary Muscular Dystrophy, Huntington’s disease and Tay Sachs combined. Because of NF’s close connection to many common diseases and disorders, such as cancer, learning disabilities, heart disease, memory loss, and brain tumors, research on NF stands to benefit 175 million Americans in this generation alone.
The Neurofibromatosis Network was founded in 1988 as a 501(c)3 non-profit organization to join together several independent state and regional NF groups wishing to work together on national projects.
“The Mission of the NF Network is to find treatments and a cure for neurofibromatosis by promoting scientific research, improving clinical care, providing outreach through education and awareness, while offering hope and support to those affected by NF.”
You can learn more about Neurofibromatosis and the Neurofibromatosis Network or to donate directly to the NF Network please visit http://nfincne.org/
You can also follow the NF Network on Facebook https://www.facebook.com/NeurofibromatosisNetwork/