{"id":114213,"date":"2022-10-21T16:30:28","date_gmt":"2022-10-21T20:30:28","guid":{"rendered":"https:\/\/www.thevalleyledger.com\/?p=114213"},"modified":"2022-10-21T16:30:28","modified_gmt":"2022-10-21T20:30:28","slug":"the-wescoe-foundation-for-pulmonary-fibrosis-and-the-pa-ipf-support-network-hold-press-conference-to-celebrate-launch-of-innovative-web-app-paipfsupportnetwork-wescoefoundation","status":"publish","type":"post","link":"https:\/\/www.thevalleyledger.com\/?p=114213","title":{"rendered":"The Wescoe Foundation for Pulmonary Fibrosis and the PA-IPF Support Network  Hold Press Conference to Celebrate Launch of Innovative Web App #paipfsupportnetwork #wescoefoundation"},"content":{"rendered":"<p><strong>COOPERSBURG, PA<\/strong> \u2013 The<a href=\"https:\/\/wescoe.org\/\" target=\"_blank\" rel=\"noopener\" data-saferedirecturl=\"https:\/\/www.google.com\/url?q=https:\/\/wescoe.org\/&amp;source=gmail&amp;ust=1666469867087000&amp;usg=AOvVaw2i1p0UNiTlkZTw0xkgNtxF\">\u00a0Wescoe Foundation for Pulmonary Fibrosis<\/a>\u00a0in conjunction with the\u00a0<a href=\"https:\/\/paipfsupportnetwork.org\/\" target=\"_blank\" rel=\"noopener\" data-saferedirecturl=\"https:\/\/www.google.com\/url?q=https:\/\/paipfsupportnetwork.org\/&amp;source=gmail&amp;ust=1666469867087000&amp;usg=AOvVaw0MgBbr6YGNabFd7tS2erDt\">PA-IPF Support Network<\/a>\u00a0brought together IPF patients, care partners, advocates, policymakers, healthcare professionals, and industry leaders to share the launch of their new one-of-a-kind web app and celebrate a very successful September Global Pulmonary Fibrosis Awareness Month. Held in Coopersburg, PA the birthplace of the Wescoe Foundation for Pulmonary Fibrosis, the press conference highlighted all programming updates, and the Borough Hall was filled with special guests Senator Pat Browne (R-16), Senate Appropriations Committee Chairman, Jim Carns with a patient perspective, and pulmonology\/critical care experts, Dr. Livia E. Bratis of St. Luke\u2019s University Health Network and Dr. Scott F. Blumhof of Lehigh Valley Health Network.<\/p>\n<p>&nbsp;<\/p>\n<p><span style=\"font-family: arial, sans-serif;\">\u201cThis is where it all began with my dad, Ron Wescoe, and the strong ties in our local community which now resonate throughout the entire pulmonary fibrosis community in Pennsylvania,\u201d said Jennifer Wescoe, Wescoe Foundation, Founder and Executive Director. \u201cWe are devoted to stakeholder mapping until everyone in Pennsylvania knows that the PA-IPF Support Network exists as an important, valuable, and free resource for all affected by pulmonary fibrosis.\u201d<\/span><\/p>\n<p><span style=\"font-family: arial, sans-serif;\">The event offered a thorough presentation about the new PA-IPF Support Network, the only state-wide pulmonary fibrosis support network in the United States, as it approaches its two-year anniversary in January. Jennifer Wescoe shared the many valuable resources that the support network offers the Pennsylvania pulmonary fibrosis community including the launch of their new web app, the only resource of its kind in the United States connecting PF patients to support and education.<\/span><\/p>\n<p><span style=\"font-family: arial, sans-serif;\">The presentation also focused on the PA-IPF Support Network\u2019s other programming highlights:<\/span><\/p>\n<ul>\n<li><span style=\"font-family: arial, sans-serif;\">Exceptional and practical resources to help navigate pulmonary fibrosis including patient guide and patient\/provider checklist<\/span><\/li>\n<li><span style=\"font-family: arial, sans-serif;\">Monthly podcasts with listeners spanning 47 countries and 2,000+ downloads to date<\/span><\/li>\n<li><span style=\"font-family: arial, sans-serif;\">Quarterly Seminars and Lung Transplant Educational Series held virtually<\/span><\/li>\n<li><span style=\"font-family: arial, sans-serif;\">Connecting patients and families to support groups<\/span><\/li>\n<li><span style=\"font-family: arial, sans-serif;\">IPF Care book \u2013 electronic flip book and printed version<\/span><\/li>\n<li><span style=\"font-family: arial, sans-serif;\">September Pulmonary Fibrosis Global Awareness Month &#8211; 31 Pennsylvania landmarks illuminated BLUE across the Commonwealth, the most in the United States<\/span><\/li>\n<li><span style=\"font-family: arial, sans-serif;\">Senate designated the week of September 18 &#8211; 25, 2022 as Idiopathic Pulmonary Fibrosis Research and Awareness Week in PA to increase awareness and understanding of IPF to support improved diagnosis and treatment<\/span><\/li>\n<li><span style=\"font-family: arial, sans-serif;\">Awareness events &#8211; Coopersburg 5K for Pulmonary Fibrosis, PF Awareness Golf Outing, and upcoming Wescoe Walk for Pulmonary Fibrosis on Saturday, October 29<\/span><\/li>\n<\/ul>\n<p><span style=\"font-family: arial, sans-serif;\">Attendees learned more about pulmonary fibrosis through thought-provoking presentations from pulmonary fibrosis experts:<\/span><\/p>\n<p>&nbsp;<\/p>\n<p><span style=\"font-family: arial, sans-serif;\"><u>What is IPF?<\/u><\/span><\/p>\n<p><span style=\"font-family: arial, sans-serif;\">Dr. Livia E. Bratis, DO &#8211;\u00a0<\/span>Chief of St. Luke\u2019s Pulmonary &amp; Critical Care Associates \/ Clinical Assistant Professor, Lewis Katz School of Medicine at Temple University<\/p>\n<p>&nbsp;<\/p>\n<p><span style=\"font-family: arial, sans-serif;\"><u>Symptom Management and Treatment for IPF<\/u><\/span><\/p>\n<p><span style=\"font-family: arial, sans-serif;\">Dr. Scott F. Blumhof, DO &#8211;\u00a0<\/span>Lehigh Valley Physician Group Pulmonary and Critical Care Medicine<\/p>\n<p><span style=\"font-family: arial, sans-serif;\">The Wescoe Foundation for Pulmonary Fibrosis and the PA-IPF Support Network graciously thanked Senator Browne for his unwavering support in championing the cause for the pulmonary fibrosis community for many years. \u201cPulmonary Fibrosis is all too prevalent in Pennsylvania, affecting our neighbors, friends and loved ones,\u201d Senator Browne said. \u201cThe launch of the new PA-IPF Support Network web app will help patients and caregivers find the resources and support they need to combat IPF. I am proud to work with the Wescoe Foundation and the PA-IPF Support Network to support their efforts to bring greater public awareness and education of this disease.\u201d The Borough of Coopersburg was also recognized for its continued support and for proclaiming September as Pulmonary Fibrosis Awareness Month.<\/span><\/p>\n<p><span style=\"font-family: arial, sans-serif;\"><b>About the Wescoe Foundation for Pulmonary Fibrosis:<\/b><\/span><\/p>\n<p><span style=\"font-family: arial, sans-serif;\">In loving memory of Ron Wescoe, Jen\u2019s beloved dad, the Wescoe Foundation for Pulmonary Fibrosis is a 501(c)3 non-profit organization that provides support, education, advocacy, and resources for patients living with Idiopathic Pulmonary Fibrosis (IPF), as well as their care partners and families, in order to sustain the highest possible quality of life.<\/span><\/p>\n<p><span style=\"font-family: arial, sans-serif;\"><b>About the PA IPF Support Network:<\/b><\/span><\/p>\n<p><span style=\"font-family: arial, sans-serif;\">We are a support network throughout the Commonwealth of Pennsylvania\u00a0<\/span>dedicated to connecting patients living with IPF, their care partners, and healthcare providers to each other as well as to important resources and information.<\/p>\n<p><span style=\"font-family: arial, sans-serif;\"><b>What is Idiopathic Pulmonary Fibrosis (IPF)?<\/b><\/span><\/p>\n<p><span style=\"font-family: arial, sans-serif;\">Pulmonary fibrosis is the progressive scarring of the lungs that occurs when air sacs known as alveoli gradually become replaced by fibrotic tissue or scar tissue. As the scar tissue becomes thicker, it leads to stiffness of the lungs, making it difficult to breathe. Pulmonary fibrosis is found in over 200 lung disorders, so it is important for your healthcare provider to identify the cause of the fibrosis because different types of fibrosis respond to different treatments.<\/span><\/p>\n<p><span style=\"font-family: arial, sans-serif;\"><b>#paipfsupportnetwork #wescoefoundation<\/b><\/span><\/p>\n<p>Information Provided By:<br \/>\nJennifer Wescoe Singley, M.Ed., NCC<br \/>\nFounder, Executive Director<br \/>\nWescoe Foundation for Pulmonary Fibrosis<\/p>\n<p>&nbsp;<\/p>\n<hr \/>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>COOPERSBURG, PA \u2013 The\u00a0Wescoe Foundation for Pulmonary Fibrosis\u00a0in conjunction with the\u00a0PA-IPF Support Network\u00a0brought together IPF patients, care partners, advocates, policymakers, healthcare professionals, and industry leaders to share the launch of &hellip; <a href=\"https:\/\/www.thevalleyledger.com\/?p=114213\" class=\"more-link\">Continue reading <span class=\"screen-reader-text\">The Wescoe Foundation for Pulmonary Fibrosis and the PA-IPF Support Network  Hold Press Conference to Celebrate Launch of Innovative Web App #paipfsupportnetwork #wescoefoundation<\/span> <span class=\"meta-nav\">&rarr;<\/span><\/a><\/p>\n","protected":false},"author":2,"featured_media":114120,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","enabled":false},"version":2}},"categories":[69],"tags":[],"class_list":["post-114213","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-in-the-valley"],"jetpack_publicize_connections":[],"acf":[],"jetpack_featured_media_url":"https:\/\/www.thevalleyledger.com\/wp-content\/uploads\/2022\/10\/Wescoe-foudation.jpg","jetpack_sharing_enabled":true,"_links":{"self":[{"href":"https:\/\/www.thevalleyledger.com\/index.php?rest_route=\/wp\/v2\/posts\/114213"}],"collection":[{"href":"https:\/\/www.thevalleyledger.com\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.thevalleyledger.com\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.thevalleyledger.com\/index.php?rest_route=\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/www.thevalleyledger.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=114213"}],"version-history":[{"count":0,"href":"https:\/\/www.thevalleyledger.com\/index.php?rest_route=\/wp\/v2\/posts\/114213\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.thevalleyledger.com\/index.php?rest_route=\/wp\/v2\/media\/114120"}],"wp:attachment":[{"href":"https:\/\/www.thevalleyledger.com\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=114213"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.thevalleyledger.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=114213"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.thevalleyledger.com\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=114213"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}